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March 2018 Newsletter

The life of a survivor may not be considered lucky, but it’s made easier by knowing there are others who understand and share similar circumstances. I am a caregiver to a brain injury survivor who also has epilepsy. 944 more words


Sometimes 80% understanding is enough

I have not been feeling well. Depressed and anxious, a little paranoid. I decided to go to a support group. I was hoping I would feel better, sometimes I feel worse afterwards. 236 more words

Brain tumour advocacy:What is the role?

The Role of Brain Tumor Advocacy Groups

This is an excellent paper which I came across, and I find it is very pertinent. I have highlighted the most important aspects here.

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March ET awareness month arrives!

March Essential Tremor Awareness Month 2018 is here. The NTF Open Day in Oxford is gathering momentum. We are pleased to announce that Matthew Walker from Insightec the makers of the guided focused ultrasound machine will be on hand during the event for people to find out more about this treatment for ET. 56 more words

Awareness Days

My friend Jo-Ann

By Sheryl Jedlinski

My long time friend Jo-Ann Golec died yesterday and I never saw it coming. Not even when she called the night before just to check in and say she loved me. 329 more words

Family Life

Scholarship Alert: EPIC Scholarship Applications are Now OPEN!

The goal of EPIC Homeschool Network, Inc. is to provide resources and encourage students to achieve academically.  By providing an academic scholarship, students are extrinsically motivated to do well in school.  239 more words

New Homeschoolers

Success at Southampton!

Chilworth Manor Hotel, Southampton, February 18th 2018. A wonderful turnout at the ET meeting. A great group, very interactive. Topics discussed were coping tips – various medications people used –  ways to raise awareness – meetups  and much more along with social chat. 30 more words

Awareness Days