Tags » Support

beginnings and ends.

When we first got the news that E had craniosynostosis, everyone thought it was a single problem. Meaning that after her surgery she would wear a helmet for a year and that would be it. 450 more words


Designs für YouTuber & Sponsoren gesucht

Der Monat November neigt sich dem Ende zu, der Vorweihnachtsstress beginnt für die meisten und auch bei streeture design wird weiterhin fleißig gewerkelt.

Neue Designs werden kreativ erdacht und mit ganzem Herzen umgesetzt, bis der… 310 more words


"Be the shoulder"

{This will be a short one, but I had to post it}

Last night I heard some sad news but it was also the best news since they announced sliced bread… 289 more words

Blogging 101

Inner Voice

Dear Oscar,

A quote we just read from Steve Jobs on our travel:

“Don’t let the noise of other opinions drown your own inner voice. And most important, have the courage to follow your heart and intuition, they somehow already know what you truly want to become. 13 more words

Oscar Pistorius

Happy Birthday To Me!

“I don’t regret difficulties I experienced; I think they helped me to become the person I am today, I feel the way a warrior must feel after years of training; he doesn’t remember the details of everything he learned, but he knows how to strike when the time is right.” 406 more words


10 Main Things We Can Do Together / Diez cosas importantes que podemos hacer juntos

1) Sign the petition (post card coming!)  to the politicians.

2) Help create our website

3) Print posters, flyers, booklets, etc.

4) Support by researching and writing grants. 345 more words


Making a Change

I have decided that I want to share my story and that I will also place educational information about CRPS and other chronic illnesses.  

If you have a chronic illness and want me to research or answer a question feel free to comment and I will post about it. 16 more words