Tags » Systemic Lupus Erythematosus

You Know You're a Spoonie When...

Disclaimer: I know some people don’t like the term spoonie, because they find it belittling or that the spoon theory doesn’t fit their experiences. I also find it is not the best metaphor for my fatigue, because to me it sounds like you can plan and manage your energy resources whereas sometimes you can’t. 584 more words


Snapchatting a Spoonie Day

I’ve been back in the UK since Monday, and have been feeling pain in the chest since, which at first I thought were asthma related, but it felt similar to pericarditis (inflammation of the heart), so I went to the GP this morning. 199 more words


Systemic Lupus Erythematosus Pipeline Analysis 2017

The study analyzed that the systemic lupus erythematosus pipeline comprises of 57 drug candidates in different stages of development. Systemic lupus erythematosus is a type of lupus in which the immune system damages its own tissues. 260 more words


Calming My Monkey Mind

This past month has been a very growing time for me. I experienced a lupus stress attack six weeks ago that triggered a plethora of actions and emotions. 741 more words

What Not to Say to Someone with Lupus

Many people do not understand what lupus is, and that’s okay; it’s a sneaky, dastardly malady.

My sister should be 52 today, and even after watching her lose her 20-year battle with it, and suffering its effects myself  for over a decade, I am still learning new things about the disease. 469 more words

What is the point?

Sometimes it feels that people are constantly telling me how best to ‘beat’ this thing.  Doctors, nurses, specialists, family, friends – all telling me how to get the illness in check and under control.   503 more words

Living With Lupus