Disclaimer: I know some people don’t like the term spoonie, because they find it belittling or that the spoon theory doesn’t fit their experiences. I also find it is not the best metaphor for my fatigue, because to me it sounds like you can plan and manage your energy resources whereas sometimes you can’t. 584 more words
Tags » Systemic Lupus Erythematosus
Many people do not understand what lupus is, and that’s okay; it’s a sneaky, dastardly malady.
My sister should be 52 today, and even after watching her lose her 20-year battle with it, and suffering its effects myself for over a decade, I am still learning new things about the disease. 469 more words