Tags » Tay Sachs

Leaves

As I work to finish a new post for this blog I am reminded of another essay I wrote 2 years ago, but never published. I suppose it was more negative than I wanted to focus on, but it feels like it was laying the groundwork for the essay I’m working on now. 1,504 more words

Motherhood

Exciting News from the Program!

After months of planning, the Program for Jewish Genetic Health is proud to announce the launch of our group genetic counseling sessions with testing for common Ashkenazi genetic diseases. 522 more words

Program For Jewish Genetic Health

Finally! A Genetic Test for Sephardi and Mizrahis Too

For years, when we got inquiries from Sephardi or Mizrahi patients about preconception genetic testing, we would respond that there is currently no testing panel as there is for our Ashkenazi patients. 616 more words

Program For Jewish Genetic Health

Day +1,500 and 2 days till officially 5 years old

Thank you, thank you, thank you for your continued love and prayers! Isaac continues to be a a miracle and proof of the power of prayer. 454 more words

Photos

The Most Special Boy, www.taspo.org

Today I want to share the most profound encounter I can remember having. This is an excerpt from the TSAPO website written by Michelle, Ethan’s mom. 871 more words

Sensory play

Santa brought these fun beads to Isaac for Christmas and I just remembered them and hydrated a few.


He was interested in the texture and temperature. 26 more words

Photos

Family Visit Recap in pictures 

We visited Grampy and Grammy in Tucson to celebrate their retirements mid-June.

Hopefully that means lots more of this:

Isaac appears to be blowing a kiss to Grammy here: … 184 more words

Photos