Tags » VP Shunt

Hydrocephalus Awareness 

I first became aware of hydrocephalus in July of last year. Little Miss Minion was still in the NICU and I had gone back to work to allow for time off once she came home. 428 more words

Flow Restrictor

So I said in an early post that I had undergone some ICP ops, but i didn’t tell you what the first one lead too.  The reason I had it was because I was still experiencing some major head pain whilst being upright and my surgeon suggested that the problem was that I had been used to a high pressure for such a long time that I was finding it difficult to adjust to a “Normal” and safe pressure.   298 more words


"We're transferring you!"

Not the words I was expecting.

I was taken to my local A&E after passing out in my home. I had been suffering with a chronic headache for what seemed like weeks, but Ive always suffered with headaches since i could remember so i thought it would eventually pass.   665 more words


Early Intervention and NICU Follow Up

Last night, we had our yearly meeting with the early intervention team and today, we had an appointment today with the NICU development team to see how Little Miss Minion is performing with her chronological vs adjusted age. 335 more words

Back to the NICU

Little Miss Minion had her ophthalmologist appointment on Thursday and I’m happy to report that she had no issues related to her prematurity! She’s probably going to get my eyesight, but hers aren’t bad enough to do anything about yet. 302 more words

Neurosurgeon Follow Up

Every couple of months, Little Miss Minion has a sedated MRI to make sure that her shunts are working well and that any excess cerebrospinal fluid is being drained. 220 more words

11 Months Old

It’s hard to believe that Little Miss Minion is already 11 months old. In the past couple of weeks, she’s said her first word (Mama), pulled herself up from sitting, started to crawl, and has tried lots of new foods. 116 more words